These are a selection of stories written by staff members at the Lighthouse of Collier. Our team members develop unique and special relationships with each client, which is reflected in this retelling of each clients’ successes.
Linda is an older blind client in her seventies living with Retinitis Pigmentosa (RP) and age related macular degeneration (AMD). Linda lives alone in a condo in a 55 and older community. She stated that she never realized how often she got help from others until it was no longer available.
The Lighthouse of Collier received a grant about 6 months ago to purchase iPads for the children to use. This is a story about how the use of an iPad has impacted one of our children.
Jake is a six year old boy living with severe Cortical Visual Impairment. Due to CVI, he displays trouble visually attending to objects for very long, tracking, and understanding visual information presented to him.
In the short time I have been working for Lighthouse Of Collier, I have had the honor of working with quite a few wonderful people.
I have been working with Mark for a little over a month on having him get to know his iPhone by using only voiceover and not struggling to use his vision. We have been going over opening and closing apps, navigating those apps, utilizing Siri in making phone calls and sending text messages and recently, we have started downloading and using Apps such as Be My Eyes and Seeing AI. Mark is very quick at learning each item I send his way and even enjoys the little homework projects I give him! He is very excited that he can communicate with family and friends again without having to ask for help in doing all of these things. Great job Mark!
Julie is a daughter of a Senior who is visually impaired and lives in Rhode Island. Julie lives in Naples and was researching ways to make her father’s phone usage more accessible. She had explained that her father has been having trouble with seeing the numbers on his phone and always misses phone calls because he can’t seem to see where to press/ tap.
Julie mentioned that her father lives in Assisted living and that are unfortunately still in a lockdown. I had asked her if her father was perhaps considering moving to Naples.
Aaron is a four year old boy living in Immokalee who has a progressive eye condition that has resulted in congenital cataracts in both eyes. Upon our first meeting, it was clear that he would be a Braille reader in the future so we spent much time over the past year working on Pre-Braille skills, including tactual discrimination. He made a lot of progress over that time.
Now he is beginning to work on the Braille alphabet which has proven to be a challenge. We have had a hard time finding ways to make the Braille alphabet fun and engaging for Aaron so he wants to focus and work on it.
Meet Joey and Anna
Music has powerful effects on human beings, including lifting moods, reducing anxiety, improving memory and connecting with others. Children who are blind or visually impaired currently face barriers in accessing music as they participate in music activities such as choir or band. Joey, a middle school student who is learning piano, saxophone and clarinet, accesses print music primarily by listening to others play and memorizing what he has heard. Anna, a college bound senior heading to Nashville, needs skills to access the curriculum as a music major. New tools and strategies are needed to teach these students how to access music independently as well as those students who may not have explored music due to inaccessibility.
Thomas is a man in his mid-fifties residing in New Jersey who worked for thirty years at an airport in the New York City area until March of last year. That is when the unthinkable happened. Thomas contracted COVID-19 and was hospitalized for two months. Thomas was able to recover from his illness and finally go home with only one apparent side effect. The virus caused him to go completely blind.
Thomas is now trying to learn how to live his life as a person who is blind. He is ready to begin the journey of learning the tools, tips and techniques needed to regain the independence he enjoyed before losing his vision. Thomas is very eager to begin that journey. However, due to state wide shutdowns he is finding it extremely difficult to get the help he needs.
Jeremy is an 18-year-old student with cortical vision impairment and cerebral palsy. Communication is a challenge for Jeremy, as he is nonverbal and has difficulty controlling his movements. As a result, it is important to communicate with Jeremy’s family to formulate goals that are meaningful to him. One particular goal was to increase social interaction with family, friends and teachers using a voice generating switch.
Lighthouse of Collier, Florida Division of Blind Services (DBS) and Jeremy’s parents all contributed to purchasing a switch, heavy-duty mounting arm and mounting plate. Jeremy’s father and brother pitched in to record approximately ten messages, ranging from hilarious movie quotes to favorite foods and music preferences.
Marion is a cultured and intelligent retired art-dealer (“Colorist”) and self-described “foodie” who is functionally blind from a history of issues with her vitreous fluid. She has little remaining vision, which occasionally enables her to see high contrast icons on her phone. However, Marion is unable to read print and requires the white cane for mobility outside of the home.
Marion has been a client off/on for the past few years and has participated in the art/clay classes and ILS workshops. She also received assistance with using the CAT Bus and self-advocacy training to request shopping assistance at Publix (to purchase hard-to-find cooking ingredients for her artistic cuisine).
David is a man in his fifties who lost all of his vision due to Retinitis Pigmentosa (RP). David has been regularly attending individual assistive technology lessons here at the Lighthouse for the past fifteen months. He is also a regular member of the Spanish speaking adjustment to blindness support group. Through the years I have had the opportunity to work with people extremely driven to overcome their challenges and succeed in reaching their goals through sheer determination and hard work. David is without doubt one of those people. Not only is David completely blind, he has newly arrived to the United States from Venezuela and speaks little to no English. His largest barrier at this time is not his visual impairment, but his inability to communicate without an interpreter.
Purchase Seeing Beyond Blindness
If you would like to own one of these cocktail table books, please donate a suggested selling price of $35.00 to Lighthouse of Collier and we will send you one straight away.
Lighthouse of Collier dedicated the book to Art Bookbinder, a man who could see beyond blindness. He was a great friend and leader. May he rest in peace. August 1942 – April 2020.